Healing Headsets For Dementia Care-Interview with Kelly Willenborg

I would love to hear from you. Send me questions or comments.

A song can do what arguments, reminders, and “just try” sometimes can’t: reach your loved one when dementia has made everything else feel impossible. We sit down with Kelly Willenborg, a brain health gerontologist and the founder of My Memory Works, to talk about why personalized music can spark connection, ease agitation, and bring back flashes of identity even in moderate to advanced stages.

Kelly explains her drug-free Healing Headsets program, including what makes these devices senior-friendly (simple oversized buttons, built-in player, micro SD playlists) and why access matters when music therapy isn’t available to everyone. We also get practical about caregiving: how to build a meaningful playlist, how many songs families can expect, and when to turn music on so it actually helps rather than becoming background noise.

We dig into real-world challenges like sundowning and bathing resistance, with a clear strategy many care partners can try immediately: start the right music about 15 minutes before the tough moment. Along the way, we talk memory cafes, peer support, Music Bingo, and how these tools can support people living with dementia or Parkinson’s while also giving caregivers a bit of much-needed respite and hope.

If you found this helpful, subscribe, share the episode with a caregiver friend, and leave a review so more families can find these dementia caregiving resources.

mymemoryworx

Support the show

Welcome To Patty’s Place

SPEAKER_01
0:10

Welcome
to
Patty's
Place,
a
place
where
we're
going
to
talk
about
grief,
dementia,
and
caregiving.
I
named
this
podcast
in
honor
of
my
mom,
Pat,
who
passed
away
from
dementia
about
two
and
a
half
years
ago.
I'm
your
host,
Lisa,
and
I
just
want
this
to
be
a
place
where
people
know
that
they're
not
alone
and
they
can
come
here
when
they're
feeling
very
overwhelmed.
So
grab
your
cup
of
tea,
your
cup
of
coffee,
or
if
you're
having
a
really
bad
day,
a
glass
of
wine,
and
come
join
us.
Today
I'm
really
excited
about
our
guest.
It
is
Kelly
Willenborg.
She
is
a
brain
health
gerontologist
and
facilitator
of
drug-free
interventions.
She
founded
My
Memory
Works,
which
is
W-O-R-X.
Uh
and
she
offers
this
is
so
cool,
healing
headsets
as
also
a
lot
of
other
things.
So
welcome,
Kelly.
I'm
very
excited
that
you're
here.

SPEAKER_00
0:57

Thank
you.
And
I
want
to
say
cheers.
I
noticed
you
had
your
logo
on
your
coffee
cup.
Yes.
And
I
I
wanted
to
follow
suit
with
you
as
the
host.
So
uh
cheers
to
you,
and
I
appreciate
the
opportunity
to
spread
the
word
on
this
ministry.

SPEAKER_01
1:14

Yes,
yes.

From Concerts To Music Healing

SPEAKER_01
1:15

So
um
how
did
you
come
up
with
this
idea?
Healing
headsets.
How
did
this
come
about?

SPEAKER_00
1:23

Well,
I
originally
was
in
music
promotions.
Okay.
So
I
promoted
um
Woodstock
bands,
Canned
Heat,
uh,
Jefferson
Airplane,
did
some
reunion
tour.
Uh
that
there
was
about
an
18-city
reunion
tour
that
I
thought
that
was
gonna,
you
know,
the
peak
of
getting
out
of
small
town
music
promotion
and
getting
into
more
of
a
national
level.
And
I
did
a
show
actually
in
Joaquegan,
and
I
realized
that
what
I
what
I
truly
was
interested
in
that
moment
when
the
music
started
as
a
promoter,
your
job
is
done.
And
I
could
see
what
the
first
notes
of
those
familiar
songs
were
doing
to
every
different
walk
of
life,
and
how
it
was
bringing
the
street
cleaner
and
the
white-collar
executive
all
on
the
same
playing
field,
and
everybody's
the
stress
was
melting.
And
I
thought
I
really
want
to
use
music
to
help
people,
help
people
who
are
suffering.
And
that's
when
I
switched
gears
from
music
promotions
into
music
healing.
Okay.
I
did
I
started
something
called
the
healing
jukebox
first,
and
that
was
in
that
was
in
uh
2010,
and
I
was
bringing
music
percussion
around
to
senior
living
and
memory
care
locations
throughout
central
Illinois,
drum
circles
and
structured
rhythmic
activities.
And
so
that's
really,
and
I
did
that
for
six
years.
Okay,
and
that
was
called
the
Healing
Jukebox.
That's
how
I
came
up
with
the
name
and
sort
of
morphed
into
uh
the
Healing
Headset
program.

SPEAKER_01
3:12

Okay,
so
it
is
similar
to
music
therapy
in
many
ways.

SPEAKER_00
3:17

It
is
uh
so
I
am
not
a
music
therapist.
Um
that
is
a
they
the
music
therapists
are
college
educated,
they
have
taken
clinicals,
and
I
always
want
to
make
sure
they
are
using
um
certainly
in
parts
of
what
they
do,
personalized
music,
but
this
is
really
a
way
for
people
to
have
access.
Unfortunately,
there
are
not
enough
music
therapists
to
meet
the
number
of
people
with
dementia,
nor
do
we
have
budgets
or
the
backing
of
funding
from
health
insurance
and
so
many
of
these
Medicare.
There,
we
don't
have
enough
funding
or
enough
people.
So
we
need
other
players.
That's
where
someone
like
myself
would
come
in,
or
a
drum
circle
facilitator
would
come
in.
This
cause
is
way
bigger
than
just
a
few
people,
right?
You've
made
a
whole
podcast
based
on
dementia,
and
you're
there's
um
it's
a
growing
problem.
So
we
I
feel
like
we
have
to
work
as
a
team
that
delivers
different
levels
of
music
intervention.
So
we
it
is
being
used
in
a
therapeutic
way,
but
I
just
wanted
to
make
that
distinction
between
what
a
music
therapist
does
as
a
clinical
side.

SPEAKER_01
4:42

And
my
mom,
through
hospice,
was
able
to
have
a
music
music
therapist
come
and
visit
her.
And
and
I
knew
when
I
heard
that
they
offered
this,
I
I
knew
that
was
right
up
her
alley
because
she
loved
music.
She
she
gave
me
my
love
of
music.
And
the
first
time
that
the
music
therapist
came,
the
next
day,
the
caregivers
could
not
wait
to
come
up
to
me
and
tell
me
what
a
difference
it
made.
My
mom
went
downstairs
to
a
party.
She
was
all
involved.
They
couldn't
get
her
to
leave
her
room.
And
then
I
was
there
a
few
times.
And
the
one
time
she
couldn't
remember
my
name,
didn't
know
who
I
was,
but
boy,
she
knew
the
words
to
my
girl.
She
started
singing
along
with
it.

SPEAKER_00
5:24

It
is
an

Why Music Breaks Through Dementia

SPEAKER_00
5:25

it's
really
incredible
uh
the
way
that
music
moves
through
these
wide
pathways
on
both
the
right
and
left
side
of
the
brain,
uh,
circumvent
circumventing
uh
areas
of
plaque
and
tangles,
maybe
if
somebody's
had
a
stroke,
other
areas
that
may
be
damaged
for
whatever
reason
that
these
that
they
are
up
against
a
neurodisorder.
And
because
of
the
way
music
travels
on
that
widespread
path,
that
gives
us
the
opportunity
to
connect
to
our
musical
memories.
It's
really,
it's
uh
it's
a
gift,
it
really
is.

SPEAKER_01
6:03

It
really,
it
really,
really
is.
And
I
knew
like
I
so
I
would
play
the
music
that
I
knew
she
loved
too.
You
know,
even
at
the
end,
I
was
playing
all
her
favorite
songs
and
stuff.
I
was
like,
I
knew
she
could
hear
it.
And
I
know
you
mentioned
on
your
website
you
say
music
is
powerful.
What
does
that
mean
to
you,
anyway?
What
does
that
mean
for
people?

SPEAKER_00
6:25

Powerful
to
me
is
if
and
I'll
use
a
an
extreme
example,
but
not
uncommon,
is
when
someone
is
predominantly
nonverbal
and
when
they
hear
the
right
music,
and
suddenly
a
word
comes
out
or
a
sentence
comes
out,
or
they
went
from
a
um
being
completely
unconnected,
no
self-expression,
right?
Where
and
then
hearing
that
right
song,
and
suddenly
the
spark
in
their
eyes,
then
looking
up
and
sharing
maybe
it's
a
smile,
maybe
it's
a
glimmer.
And
I
that's
why
the
um
the
movie,
and
I
was
involved
in
this
movie
a
little
bit
called
Alive
Inside,
they
chose
that
as
the
movie
title
because
it
really
describes
what
can
happen
when
we
use
the
right
music.

What Healing Headsets Actually Are

SPEAKER_01
7:30

So
explain
to
me
exactly
what
are
the
healing
headsets
for
someone
who's
not
familiar
with
this.
Okay.

SPEAKER_00
7:37

So
the
headset,
and
I'm
gonna
I
I
hold
on
here.
Sure.
The
headset
itself
is
going
to
it's
over-the-ear
fashion.
So
for
anybody
in
the
younger
crowd
might
think
of
uh
beats
headsets,
right?
Okay,
and
the
over-the-ear
headset
um
has
inside
of
it
a
music
player.
The
music
player,
these
are
wireless,
and
what
we
were
using
in
the
past,
I
have
been
through
so
many
generations
of
this.
I
started
out
with
CD
players,
okay,
and
a
large
cart
and
lots
of
CDs.
Moved
to
an
iPod,
those
still
are
cumbersome.
Wires,
losing
them,
etc.
This
has
been
um
very
efficient
because
the
wireless
and
the
fact
that
the
player
is
built
inside
it's
one
device
instead
of
two.
And
the
uh
we
load
their
favorite
songs
on
a
small
SD.
It's
called
a
micro
SD
card,
it's
the
size
of
a
fingernail,
your
pinky
nail,
and
we
put
that
into
the
headset.
It
only
has
uh
three
buttons
and
they
are
oversized.
So
the
headset
is
actually
um
manufactured
so
that
it's
senior-friendly.
Okay,
good
to
know.
Yes.
That
in
and
of
itself
is
hard
to
find,
right?

SPEAKER_01
9:02

It
is
just
with
my
dad
his
iPhone,
yes.

SPEAKER_00
9:09

The
finger
dexterity,
um,
our
our
ability
to
use
our
fingers
and
uh
for
whatever
the
task
might
be.
This
has
really
there's
been
a
lot
of
thought
put
into
the
design
of
the
headset.
And
I
mentioned
just
momentarily
the
movie
Alive
Inside.
The
headset
was
actually
designed
by
the
film
director,
oh,
okay,
Michael
Rosotto
Bennett
from
Alive
Inside.
He
and
I
have
collaborated
uh
multiple
times
over
the
years.
I
was
involved
in
helping
promote
the
movie
when
it
first
came
out,
and
then
um
I
worked
with
Michael
for
about
a
year
and
a
half,
and
then
really
now
I'm
taking
the
headsets
that
he
designed
and
distributing
them.
So
I
want
to
give,
I
just
want
to
make
sure
I
give
Michael
a
shout
out
because
of
his
work
with
the
film
was
how
this
uh
became
something
that
was
crafted
specifically
for
its
user.

SPEAKER_01
10:12

Which
I
just
think
is
so
it's
such
an
awesome
thing
for
somebody
with
dementia,
you
know,
to
put
those
songs
in
there
for
them
to
hear.
Because
for
my
mom,
you
know,
like
sh
she
was
way
back,
and
so
that's
what
she
appreciated.
I
was
always
saying
I'm
glad
I
listened
to
her
stories
because
I
was
able
to
follow
her
and
jump
right
into
her
stories,
but
music
plays
such
a
role,
you

Free Headsets And Building Playlists

SPEAKER_01
10:35

know,
in
all
of
that.
So,
well,
first
of
all,
they're
free.
Is
that
is
that
correct?

SPEAKER_00
10:42

Yes.
So
we
uh
the
target
is
reaching
people
in
their
homes.
Okay.
That's
our
first,
that's
our
primary
target.
So
if
you're
a
care
partner
and
you
are
uh
caring
for
somebody
with
dementia,
um,
you
know,
it
does
it's
it
does
the
its
best
work
if
they're
maybe
moderate
to
advanced
stages.
Okay.
So
if
somebody
has
mild
MCI,
mild
cognitive
impairment,
if
they're
in
the
early
stages,
those
are
those
are
times
to
try
to
document
what
are
the
songs.
Oh,
yeah,
good
point.
Yeah.
The
most
to
you,
because
they
could
become
one
of
your
most
valuable
tools
as
the
disease
progresses.
So
I
would
encourage
people
to
get
their
uh
playlist
or
favorite
song
list
as
a
homework
project
if
they
have
been
diagnosed
with
MCI.
You
were
asking
about,
you
gotta
get
me
back
on
track
here.

SPEAKER_01
11:50

That's
okay.
Yeah,
so
I
see
on
your
website
there's
a
button
they
could
click
to
request
it,
and
they're
they
really
are
free.

SPEAKER_00
11:57

That's
so
I
do
have
people
say,
Yes,
I
just
wanted
to
call
to
see
if
you
were
legitimate.
Is
this
a
scam?
Right.

unknown
12:05

Yeah.

SPEAKER_00
12:06

Because
our
seniors
are
constantly
targeted
for
things
like
that.
Yeah,
and
it's
it's
a
legitimate
project.

SPEAKER_01
12:13

Okay.

SPEAKER_00
12:14

Um,
what
I
have
I
have
written
for
lots
of
grants.
I've
tried
to
partner
with
so
many
different
programs.
And
what
happened
as
uh
somebody
that
is
trying
to
advocate
this
movement
is
that
I
got
very
frustrated
with
not
finding
the
funding.
And
I
felt
that
it
was
too
important
as
a
tool
for
not
just
the
person
with
dementia,
but
also
the
care
partner
to
have
active
respite
or
to
gain,
and
we
can
talk
a
little
bit
more
about
gaining
cooperation.
So
it
was
important
to
me
that
all
income
levels
were
had
accessibility
to
the
headsets.
So
it's
it's
being
funded
um
through
private
donations.
Okay.
Um
and
I
want
to
give
a
shout

Using Music For Bathing And Sundowning

SPEAKER_00
13:05

out
to
um
JJ
Adventures,
JJ
Gaming.
They
were
one
of
our
biggest
sponsors.
Okay.

SPEAKER_01
13:11

And
so,
as
how
does
can
this
help,
especially
like
with
sundowning
and
bathing
possibly?
Because
those
are
big
ones
for
people
with
dementia.
You
know,
the
agitation
ramps
up
with
showers,
bathing,
and
in
sundowning.
All
of
a
sudden
they
seem
to
be
okay,
and
then
boom,
it's
they're
just
agitated.

SPEAKER_00
13:33

Exactly.
I
I
just
had
a
discussion
with
a
woman
yesterday
about
when
to
put
the
headset
on.
We
were
talking
specifically
about
bathing
and
starting
the
music
about
15
minutes
prior
to
that
task,
whatever
it
might
be.
Maybe
they're
uh
maybe
it's
wound
care
or
uh
whatever
it
might
be
that
that
you're
noticing
a
pattern
of
uh
pushback
from
them.
Get
the
music
going
about
15
minutes
prior
to,
so
that
those
neurochemicals
can
fire
up
and
they
are
um
really
in
a
in
a
better
state
of
mind.
So
you're
really
teeing
yourself
up
for
uh
someone
that
is
um
they're
because
of
the
neurochemical
boost,
they're
going
to
naturally
be
a
little
more
open-minded.
It's
not
a
guarantee,
right?
But
most
of
the
times
we
need
all
the
help
that
we
we
can
get,
right?
Exactly.
The
more
we
can
get
into
it
and
really
maybe
we're
gett
having
them
stand
up
and
dance
a
little
bit
to
it
because
we
know
that
the
one
big
the
biggest
obstacle
of
the
day
is
about
to
take
place.
So
maybe
we
even
put
on
splish
flash,
taking
a
bath
as
one
of
the
songs
on
at
whatever
it
takes
to
start
getting
in
the
mood,
but
using
that
music
uh
about
15
minutes
prior
to.

SPEAKER_01
15:09

Yeah,
and
sometimes
I
mean
there
are
days
you
have
to
use
every
single,
you
know,
every
trick
in
the
book
that
you
have,
and
then
other
days,
one
and
it's
fine.
You
just
moment
to
moment
it
changes.
So
anything
that
you
can
give
the
caregiver
it
can
help
to
add
to
add
to
that.
So
you
said
it
makes
it
easy
to
use
because
of
the
buttons.
So
what
if
they
have
a
hard
time
locating
the
power
button?
Like
if
it's
the
person
with
the
dementia.

SPEAKER_00
15:39

Yes,
I
I
do
recommend
having
the
care
partner
hit
the
on
button
for
them.
Okay.
They
can
hit
the
on
button
and
then
place
it
first,
checking
for
volume
to
see
if
it's
suitable.
Okay.
That's
no
matter
what.
And
then
um
that
way
it's
already
turned
on
and
the
person
doesn't
have
to
worry
about
um
the
dexterity
issues.
We
just
have
the
care
partner
put
it
on
for
them.

SPEAKER_01
16:09

That
makes
sense
because
sometimes
like
they
forget,
they
don't
know
what
the
buttons
are
and
stuff
for
all
types
of
things,
phones,
remotes,
and
everything.
So
uh
what
if
they
have
trouble
adapting
to
keeping
them
over
their
ears?
Any
suggestions?
Uh
I'm
gonna
jump
back
just
momentarily.

SPEAKER_00
16:29

There
are
depending
on
the
level
of
the
cognitive
changes,
um,
I
have
had
a
few
clients
that
have
used
a
textured
sticker,
something
fuzzy
or
something
that
makes
it
stand
out,
the
so
the
power
button
stands
out.
Oh,
okay.
And
that
has
been
that
has
worked
for
a
few
people.
It
really
does
depend
on
the
individual
and
where
they're
at.
Um
you
were
asking
about
those.
So
one
of
the
questions
that
people
commonly
ask
me
is
what
about
hearing
aids?
You
were
talking
about
ears.
And
that
is
at
least,
at
least
half
of
the
folks
that
have
hearing
aids
have
no
problems
with
it.
I
usually
suggest
to,
if
they
can
get
a
hold
of
maybe
a
grandkid's
headset
or
a
neighbor's
headset,
just
to
try
it
as
an
experiment.
Okay.
With
what
it
feels
like
to
have
something
over
your
ears.
If
they
are
ultra
sensitive
to
putting
a
hat
on
or
um
things
of
that
nature,
it
might
be
good
to
test
what
does
a
headset
feel
like
on
them.

SPEAKER_01
17:43

Okay.

SPEAKER_00
17:43

There
have
been
times
where
um
we've
this
is
really
rare.
I've
sent
out
over
2,000.
Okay.
And
I
think
I've
had
maybe
three
where
somebody
said
it's
not
working.
So
um
then
I
donated
a
small
um
wireless
speaker
that
they
could
put
the
micro
SD
card
in,
and
the
speaker
played
the
music
for
the
person.
So
we
were
still
able
to
accommodate
them.

SPEAKER_01
18:10

Okay.
And
so
how
many
songs
can
somebody
load?

SPEAKER_00
18:14

So,
you
know,
I
don't
know
about
you,
but
I
like
to
get
bang
for
the
buck,
even
though
it's
free.
Right.
But
I
like
to
get
the
most
out
of
an
opportunity.
So
those
that
do
their
homework
and
put
some
real
thought

Comfort Tips Hearing Aids And Workarounds

SPEAKER_00
18:30

into
what
songs
was
there
a
school
song
or
a
wedding
song,
or
uh
what
there's
a
lot
of
ways
we
can
um
give
people
ways
to
ask
the
right
questions,
ask
siblings.
Uh
the
more
homework
they
do
on
the
input
means
that
we're
gonna
have
a
few
more
artists
and
we
can
make
the
playlist
longer.
If
somebody
only
gives
us
a
very
few,
sometimes
I've
somebody
gives
us
four
artists
to
choose
from,
you're
gonna
end
up
with
maybe
25
or
30.
Oh,
it's
a
good
thing.
But
if
you
have
lots
of
lots
of
artists,
you
might
have
any,
you
might
have
70.
Oh,
that's
that's
a
lot.
That
which
is
good.
An
average,
an
average.
I
like
uh
an
average
is
probably
somewhere
around
that
that
40
number.

SPEAKER_01
19:24

Okay,
but
that
that
is
a
lot.
That
that's
a
lot
of
good
good
music
that
can
get
them
in
a
lot
of
different
areas
to
to
think
of,
you
know,
it's
not
just
like
five
songs
on
repeat,
you
know.
Exactly.
Yeah,
so
that
that's
really
cool.
Now,
I
noticed
when
I
was
on
your
website,
you
also
have
some
other
activities
too.
So
you
have
like
uh
um
a
memory
cafe
because
you're
in
Effingham,
Illinois,
correct?
That's
correct,
yes.

SPEAKER_00
19:51

Um
so
started
a
memory
cafe
called
Club
Maverick
for
our
local
community
as
a
place
for
um
stimulation,
connection,
a
safe
place
with
the
right
type
of
dementia-friendly
activities.
And
uh
that's
I
think
in
its
second
year.
And
like
many
memory
cafes,
it
is
um
housed
and
ran
by
our
local
library.
So
the
Effingham
Public
Library
is
in
charge
of
that.
And
we
hope
we
have
it
once
a
month
on
the
first
Tuesday
of
the
month
at
10:30
a.m.
So
we'll
I
hope
we
we
are
continuing
to
try
to
reach
more
people
um
to
grow.
It's
it's
it's
difficult
uh
because
we
we
the
brain
is
an
organ
just
like
anything
else
in
our
body.
So
we
getting
people
to
um
realize
the
value
of
peer
support,
no
matter
what
the
ailment
is,
we're
really
working
on
destigmatizing
and
um
trying
to
let
people
know
that
this
is
a
safe
place
that
you
could
not
only
help
your
loved
one,
but
also
maybe
get
tips
and
guidance
from
other
care
partners
while
you're
at
the
activity.

Memory Cafes And Peer Support

SPEAKER_00
21:10

Thank
you
for
asking
about
that.

SPEAKER_01
21:12

Yeah,
that's
very
important
because
uh
my
dad
and
I
made
friends
with
other
family
members
of
the
other
residents
where
my
mom
was,
and
that
was
so
powerful
because
they
they
still
know
exactly
how
you
felt
and
different
tricks
and
tips
that
they
use
and
stuff.
And
then
it
was
nice
to
know
that
when
if
my
dad
and
I
weren't
there
or
something,
uh
you
know,
they
would
become
be
able
to
tell
us,
oh
no,
my
mom
did
this
or
that,
and
we
could
say
that
to
about
their
um
their
loved
ones
as
well.
And
then
I
know
you
were
talking
earlier,
so
you're
starting
Music
Bingo,
is
that
correct?

SPEAKER_00
21:48

Yes,
okay.
Really
excited
about
being
able
to
offer
this.
Um,
it
it's
a
a
program
that
can
be
done
online.
Okay.
Uh,
and
we
have
some
in-person.
Groups
that
are
starting.
I'm
trying
to
talk
to
some
centers
in
Chicago
about
being
part
of
our
pilot.
So
the
um
the
online
program
is
starting
next
week
on
Wednesday,
June
3rd.
There
is
a
group
called
the
Dementia
Action
Alliance
that
folks,
if
they
go
to
the
website,
it's
d
anow.org.
Okay.
And
they
can
register
to
be
part
of
the
music
bingo
game.
And
we
send
them
their
an
their
own
unique
bingo
card
and
they
print
it
off.
Maybe
they
get
some
help
from
a
family
member.
They
print
it
off
and
then
they
join
in
on
a
one-click
link
for
a
Zoom.
So
we're
on
a
meeting
and
they're
in
with
other
folks
that
have
dementia.
And
we
welcome
care
partners
or
those
with
dementia.
This
is
a
safe
place.
Um
you
don't
have
to
don't
have
to
be
great
at
naming
that
tune
because
we
do
we
give
people
a
chance,
but
we
also
uh
announce
what
the
song
is,
and
um
we
just
have
a
lot
of
fun
with
this
new
program.
We'd
love
to
have
some
listeners
join
us
next
week.

SPEAKER_01
23:15

I
think
that
would
be
really
fun
to
do
it
because
it's
like
it's
still
stimulating
them
and
trying
to
remember
the
the
name
of
the
song.
And
I
mean,
I've
done
music
bingo
just
in
the
community
just
for
regular,
and
I
have
I,
you
know,
I
like
it
sometimes
better
than
regular
bingo,
but
I
think
for
person
with
dementia
with
the
caregiver,
that
could
be
an
activity
that
you
can
do
with
them
and
hopefully
that
calms
them
or
puts
them
in
a
nice
space
for
that
evening
at
least
for
it.

SPEAKER_00
23:43

It
does.
I
ran
the
program
in
uh
in-person
event
in
Florida,
and
my
very
first
game,
somebody
with
dementia,
uh
advanced
dementia
that
was
nonverbal,
came
and
she
ended
up
winning
the
game,
the
first
game
I've
ever
uh
hosted.
Oh
good.
And
it
just
it
really
kind
of
left
me
in
tears
because
the
joy
that
she
left
with
enjoying
music
from
her
past
and
then
being
the
uh
champion
of
our
little
event,
uh
you
can
see
what
difference
it
made
in
the
rest
of
her
day.
The
care
partner
reached
out
to
us
a
few
days
later
and
thanked
us
and
wanted
to
make
sure
we
had
more
events
coming
up.
So
I
um
it
is
it
also
challenges
people
by
when
you
look
at
the
card,
you're
using
visual
spatial
skills
to
locate
the
song
on
the
bingo
card.

SPEAKER_01
24:41

So
it
really
can
help
all
different
levels.
And
I
know
um
in
my
mom's
memory
care
facility,
they
played
bingo
a
lot,
uh,
but
they
never
played
music
bingo,
which
I
never
thought
of
like
they
should.

Music Bingo For Connection And Joy

SPEAKER_00
24:55

That's
something
that
could
it's
a
this
is
I
want
to
give
a
shout
out
to
AMI
Entertainment,
they're
one
of
the
big
jukebox
companies
um
globally,
uh-huh.
And
I
was
able
to
partner
with
them
and
to
work
on
licensing
music
and
creating
this
program.
Um,
that
this
is
really
state
of
the
art.
There's
not
anything
else
like
it
out
there.
So
I
I
know
they
have
a
Chicago
office,
and
I
just
wanted
to
make
sure
that
uh
that
I
gave
a
shout
out
to
those
that
are
helping
make
this
possible.

SPEAKER_01
25:25

Um,
and
then
I
also
saw
because
you
have
a
lot
of
cool
stuff
on
your
website,
you
have
a
program
called
Peace
for
Parkinsons.
What's
that?

SPEAKER_00
25:34

So
I
live
in
a
rural
area
in
Illinois,
and
our
uh
unfortunately,
those,
you
know,
Parkinson's
is
the
fastest
growing
neurodisorder
on
the
globe
right
now.
And
we
did
not
have
support
for
our
those
with
Parkinson's.
They
were
driving
to
local
communities
to
try
to
get
some
sort
of
um
activities
or
support
group.
So
I
set
up
a
Parkinson's
office
to
be
able
to
help
people
with
Rocks
Steady
Boxing,
give
setting
up
support
groups
monthly,
and
really
just
trying
to
build
a
community
and
then
also
scholarships
for
nurses
and
therapists
to
become
educated
on
um
how
to
work
and
provide
care
specific
to
those
with
Parkinson's.
So
it
is
a
um
a
big
part
of
also
all
another
big
part
of
what
I
uh
what
I
do
and
where
my
passion
lies.
Well,
and
a
lot
of
times
they
overlap
too.
They
absolutely
do.
They
absolutely
and
so
um,
if
somebody
is
in
the
advanced,
and
thank
you,
whether
you
knew
it
or
not,
for
leading
me
down
the
path,
but
if
somebody
is
in
uh
more
towards
the
latter
stages
of
Parkinson's
and
have
cognitive
changes
or
common,
the
headset,
contact
me.
We'll
set
you
up
with
a
free
headset.
Parkinson's
would
also
be
included
in
this.
Um,
I
can't
the
memory
cafes
I've
set
up
70
different
memory
cafes
have
received
kits
with
a
headset
for
every
person
in
their
memory
cafe
and
all
across
the
nation.

SPEAKER_01
27:14

So,
how
can
somebody
where
can
they
find
a
memory
cafe?

SPEAKER_00
27:18

So
um
a
memory
cafe
alliance
has
a
directory
that
they
can
go
to
the
memory
cafe
alliance,
look
for
the
directory,
put
in
their
local
area,
find
where
that
cafe
is,
and
um
I
can
work
with
the
cafe
leaders
to
set
up
headsets
for
the
members
of
that
cafe
if
we
haven't
already.
I've
got
several,
several
in
the
Chicago
area
that
um
have
taken
taken
advantage
of
this
opportunity.
But
um
I
I
wanted
to
mention
that
because
I
said
it's
mostly
working
with
people
that
are
at
home,
which
a
lot
of
the
folks
at
the
memory
cafes
are
living
at
home.
But
this
is
another
way
for
us
to
be
the
whole
goal
is
to
get
it
in
the
hands
of
more
people.

SPEAKER_01
28:04

Yes.

SPEAKER_00
28:04

Um,
if
I
work
with
a
memory
care
or
a
senior
living
home,
I
do
ask
for
um
there
is
a
donation,
you
know.
We
we're
looking
for
a
little
fee
because
they
actually
have
budget
budgets
to
work
with.

SPEAKER_01
28:16

Oh,
exactly.
Yeah.

SPEAKER_00
28:17

Yeah.
So
that
is
the
difference.

SPEAKER_01
28:20

Yeah.
No,
I
mean,
I
agree.
I
think
that
I
because
when
I
I
actually
found
you
on
Instagram,
I
was
scrolling
through
and
I
was
like,
this
is
such
a
cool
idea.
Like,
I
wish
I
would
have
had
that
for
my
mom,
you
know.
I
don't
know
if
she
would
have
worn
it
for
a
long
time,
but
I
know
she
would
have
liked
it.
You
know,
because
she
just
always
loved
music,
you
know.
So
uh
I
used
to
joke
with
her
and
tease
her
that
she
didn't
uh
know
um
uh
uh
a
lot
of
the
the
big
you
know
bands
you
think
of
from
the
60s,
like
Jefferson
Airplane
or
that,
and
she
would
laugh
and
she'd
tell
me
she
liked
Gary
Lewis
and
the
Playboys
and
the
Mo
all
the
girl
groups
from
the
Motown.
Like
I
still
have
her
60s,
45s,
you
know.
And
she
didn't,
you
know,
I
was
like,
Are
you
sure
you
were
alive
in
the
60s?
You
know,
she's
like,
that's
what
I
like.
And
then
she
loved
Barry
Manilow.
That
was
her
favorite.

SPEAKER_00
29:07

Oh,
Copa
Cabana.

SPEAKER_01
29:09

Yeah,
she
loved
Barry,
you
know.
So
uh
she
listened
to
all
that
type
in
Barbara
Streisand
and
you
know,
and
with
that,
which
is
what
I
played.
So,
but
it
made
such
a
difference
for
her,
you
know,
to
listen
to
all
that.
And
I
think
sometimes
um
as
caregivers,
we
we
forget
about
those
little
things
that
can
help
because
you're
so
overwhelmed,
you
know.

SPEAKER_00
29:33

You
know,
I
I
recently
had
a
gal
say,
when
my
husband
isn't
listening
to
it,
sometimes
I
am,
and
it's
helping
me
too.
And
I

Parkinson’s Support And Wider Access

SPEAKER_00
29:45

want
to
it
so
uh
they
there
are
so
many
things
happening
that's
such
a
heavy
load
for
care
partners,
and
that's
what's
driving
this
as
a
gift
to
them.
Uh,
the
testimonials
that
come
back
every
week
uh
just
bring
me
to
my
knees
sometimes
as
to
the
difference
that
it's
making.
And
we
just
hope
that
um
we
can
reach
a
few
more
people.
Now,
if
someone
stops
using
it
for
whatever
reason,
it
becomes
inactive.
We
do
ask
people
if
they
would
send
it
back
to
our
office
or
bring
it
back
to
the
memory
cafe,
maybe
that
they
received
it
from.
And
we
um
clean
it
and
re-home
it,
set
it
up
with
a
new
playlist.
So
we're
we
want
to
build
some
sustainability
in
the
program
so
we
can
keep
growing.

SPEAKER_01
30:38

Oh,
well,
that's
good
to
know
too.
That
that's
nice
as
well,
too.
And
I
and
I
know
I
why
do
you
think
a
caregiver
should
take
the
time
to
share
the
music
with
their
loved
one?
How
do
you
think
that
helps?

SPEAKER_00
30:56

I
I
think
that
we
need
to
remember
how
important
it
is
to
be
very
specific
with
them.
Uh
that
are
uh
certain
songs
are
gonna
unlock
their
past
and
give
them
the
ability
to
express
them.
That
when
we
take
away
the
ability
to
express
ourselves
through
words,
the
song,
where
does
all
of
that
go
when
we
cannot
express
ourselves?
You
can
imagine
how
agitated
you
would
be
if
you
couldn't
really
get
out
the
words
or
had
to
ask
something
that
you
that
you
asked
before,
you're
asking
again,
you're
confused.
There,
um
what
they
are
managing
internally,
and
then
they
don't
have
the
ability
to
express
that
frustration
in
healthy
ways
sometimes.
This
can
not
only
help
the
person
with
dementia
if
we
choose
the
right
songs
again,
uh,
but
it
that
will
be
a
direct,
a
direct
effect
on
the
care
partner
if
they
can
create
some
calm
and
joy
in
that
person's
world
for
for
a
little
bit,
right?
A
lot
of
people,
I
mean,
uh
sometimes
it's
a
matter
of
limiting
how
much
they
listen
because
some
people
love
it
so
much
they
have
it
on
for
hours.
They
want
to
they
want
to
get
in
the
car
and
go
to
the
doctor's
office
with
it,
be
able
to
um
pass
the
time
in
the
in
the
lobby
of
the
doctor's
office
waiting
for
40
minutes.
Um,
there's
lots
of
ways
it
can
be
used.
I'm
thinking
the
dentist
might
be
a
good
place.
Yeah.
I
haven't
heard
anyone
say
that.

SPEAKER_01
32:43

Because
uh
as
the
disease
progresses
and
when
they're
in
different
situations
that
are
new,
different
environments,
it's
very
overwhelming
and
overstimulating
for
them,
and
they
get
agitated
very
easily.
Uh,
so
I
could
see
where
that
would
help.

SPEAKER_00
32:59

So,
what
happens
from
and
not
to
uh
get
too
scientific,
but
what
happens

The Brain Science Behind The Calm

SPEAKER_00
33:05

is
it
is
a
way
our
default
network
is
that
ticker
tape
of
thought
that's
going
and
creating
that
extra
anxiety.
It
is
a
shortcut
to
hacking
the
default
network.
Uh
I
myself
have
some
ADD.
So
if
I'm
gonna
work
on
a
chore
that's
hard
for
me
to
keep
my
attention,
laundry
might
be
one
of
them.
In
order
for
me
to
stay
on
task,
I've
got
my
headset
on
because
it
is
keeping
my
default
network.
I
get
focus
and
attention
because
now
I
am
no
longer
getting
the
ticker
tape
of
thought.
So
it's
hacking
our
brains,
the
neuroscience
of
our
brains,
so
that
we
can
uh
leave
that
chaos
that
can
that's
happening.
And
um,
that's
why
people
use
it
to
work
out.
It's
not
just
the
um
the
beats
per
minute,
but
it's
also
the
attention
and
focus
um
that
it
can
that
it
can
booster.

SPEAKER_01
34:09

See,
music
is
just
amazing.
That's
why
I
love
it
so
much
with
it.
So
now
if
somebody
is
interested
in
this,
they
can
go
to
your
website,
correct?
And
it's
my
memory
work,
it's
W-O-R-X.
It's
dot
org.
My
memorywork.org.
And
they
can
all
the
information's
there,
they
can
click
on
requesting
the
healing
headset,
and
they
can
get
that
going,
and
they
can
also
look
up
the
memory
cafes
and
and
all
of
that
to
help
with
it
for
this.
Like
I
said,
I
just
think
it's
awesome.
I
just,
you
know,
I
just
think
it's
such
a
cool
way
to
help
people
with
dementia
because
we
it's
easy
to
get
frustrated
with
them
because
it's
it's
such
a
overwhelming
disease,
you
know.
And
as
the
caregiver,
you
know,
I've
heard
many
people
that
I've
talked
to
that
it's
it's
actually,
I
think,
harder
on
the
caregiver
than
it
is
for
the
person
with
dementia,
depending
on
where
you're
at
with
things.
And
you
just
need
to
figure
out
something,
little
things.
And
I
also
think
with
the
music
too,
it
helps
you
be
in
that
present
moment
with
with
your
loved
one,
you
know.

SPEAKER_00
35:19

It
does.
We
just
recently
started
offering
a
a
companion
connect
so
that
you
can
actually
be
listening
to
the
same
song
as
they
are
at
the
same
time.
Okay.
And
um
it
is
because
if
they're
in,
if
they're
in
the
hospital
and
maybe
they're
they're
sharing
a
room
or
they're
at
adult
day
centers.
Right.
Yeah,
yeah.
And
there's
other
things
happening
in
the
room,
then
two
people
can
have
the
headset
on
and
they
can
enjoy
it
together.
Uh,
so
there
are
there
are
lots
of
opportunities,
but
um
we
we
just
we
just
want
to
contribute
to
to
something
that
has
been
a
um
it's
it's
really
it's
been
a

How To Request And Final Thanks

SPEAKER_00
36:05

public
health
issue,
and
we
need
more
players
and
funding
and
people
that
can
help
help
those
that
are
facing
it.
So
we're
just
trying
to
do
a
little
a
little
small
part.
That's
all.
We're
just
wanting
to
do
a
small
part,
and
music's
actually
doing
the
work.

SPEAKER_01
36:22

Well,
it
is,
and
I
just
think
it,
like
I
said,
I
just
think
it's
a
great
idea,
and
hopefully
more
people
will
try
it
because
you
gotta
try
everything
when
you
have
a
loved
one
with
dementia,
you
know,
even
if
it
helps
them
for
a
few
minutes,
you
know,
maybe
the
next
day
it'll
help
them
even
longer,
but
it
also
can
bring
out,
you
know,
for
those
few
hours
and
it'll
make
them
happy
or
might
bring
out
some
more
elucent
moments,
or
just
you
just
don't
know,
but
it's
it's
a
good
way.

SPEAKER_00
36:49

For
sure.
Somebody
somebody
said
their
loved
one
was
shedding
tears
during
a
song,
and
she
said,
Do
you
want
me
to
turn
it
off?
And
he
said,
No.
That
was
a
release
that
that
person
needed
to
have,
yeah,
and
they
were
enjoying
it.
And
uh
there's
just
um
it
it's
incredibly
powerful.
I'm
I'm
grateful
to
be
involved
and
thankful
to
have
some
of
the
donors
that
are
keeping
us
going,
um,
and
and
finally
getting
the
some
momentum.
I've
really
been
trying
to
get
this
rolling
for
several
years.
So
programs
like
yours
that
can
help
us
get
the
word
out
that
uh
is
uh
I
I'm
very
grateful
for
that.
Thank
you.

SPEAKER_01
37:36

Well,
like
I
said,
I
found
you
on
Instagram.
So
I
was
like,
I
was
like,
oh,
this
is
so
cool,
you
know,
because
like
I
said,
my
mom
was
always
a
music
lover.
She
taught
me
to
learn
love
music,
and
so
I
just
think
any
kind
of
healing,
you
know,
that's
like
drug-free
that
can
help,
you
know,
we
need
to
let
people
know
that
there's
something
so
easily
available
to
help,
and
helps
the
caregiver
too,
with
it,
you
know.

SPEAKER_00
38:03

Mutually
beneficial.
Yes.

SPEAKER_01
38:05

Yes.
So
people
can
go
to
your
website,
mymemorywork.org,
and
hopefully
you'll
get
a
lot
of
people
that
will
check
in
for
it.
So
thank
you
so
much
for
joining
us
today.
You
are
welcome.
Thanks
for
having
me
around
today,
and
cheers
to
you.
Yes.
So
hopefully
everyone
will
check
out
your
what
your
website
and
you've
enjoyed
this
discussion
here
and
learning
more
about
how
music
is
healing
for
especially
with
people
with
dementia
and
Parkinson's
or
any
neurocognitive
disorder.
So
please
leave
us
a
review.
Join,
uh,
subscribe
to
our
channel,
and
hopefully,
if
you
enjoyed
your
cup
of
tea,
your
cup
of
coffee,
or
that
bad
day,
and
a
glass
of
wine,
and
please
join
us
for
another
episode
of
Patty's
Place.

Share the love

Leave a Reply

Your email address will not be published. Required fields are marked *